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Version
1.0
Size
32.96 Mb
Updated
1 month ago
Released
29 May 2026
Description
Duchenne Map helps families affected by Duchenne and Becker muscular dystrophy find care, clinical trials, registries, and patient organisations — anywhere in the world.
Living with a rare disease often means searching alone. Where is the nearest specialised clinic? Which research study is recruiting? Which patient organisation supports families in our country? Duchenne Map brings these answers together on one map, free for everyone.
WHAT YOU CAN DO
• Explore a global map of care centres, clinical trial sites, patient registries, and patient organisations supporting people with Duchenne and Becker muscular dystrophy.
• Filter by your specific situation — mutation type, exon skipping target, age range, recruiting status, and more.
• View detailed information for each trial or centre, including eligibility criteria, recruitment status, and contact details.
• Save your profile to return easily to the resources that matter to you.
• Run a patient organisation or care centre? Register it directly through the app so other families can find you.
WHO IT'S FOR
Duchenne Map is built primarily for patients, parents, and caregivers — but clinicians, researchers, and patient advocacy groups will find it useful too. Anyone working to connect a family with the right resources is welcome.
ABOUT THE DUCHENNE DATA FOUNDATION
Duchenne Map is a project of the Duchenne Data Foundation, a non-profit organisation working to improve the lives of people with Duchenne and Becker muscular dystrophy by making data, knowledge, and connections easier to access. The app is completely free, contains no advertising, and we do not sell user data.
A NOTE ON WHAT THIS APP IS NOT
Duchenne Map is an information and signposting tool. It is not a medical service, does not provide diagnosis or treatment, and is not a substitute for professional medical advice. Always speak with a qualified healthcare professional for medical decisions.
Have a clinic, registry, or organisation that should be on the map? Contact us through the app or visit duchennedatafoundation.org.
Estimates
Availability
Devices
iPhone5s
iPadAir
iPadAirCellular
iPadMiniRetina
iPadMiniRetinaCellular
iPhone6
iPhone6Plus
iPadAir2
iPadAir2Cellular
iPadMini3
iPadMini3Cellular
iPodTouchSixthGen
iPhone6s
iPhone6sPlus
iPadMini4
iPadMini4Cellular
iPadPro
iPadProCellular
iPadPro97
iPadPro97Cellular
iPhoneSE
iPhone7
iPhone7Plus
iPad611
iPad612
iPad71
iPad72
iPad73
iPad74
iPhone8
iPhone8Plus
iPhoneX
iPad75
iPad76
iPhoneXS
iPhoneXSMax
iPhoneXR
iPad812
iPad834
iPad856
iPad878
iPadMini5
iPadMini5Cellular
iPadAir3
iPadAir3Cellular
iPodTouchSeventhGen
iPhone11
iPhone11Pro
iPadSeventhGen
iPadSeventhGenCellular
iPhone11ProMax
iPhoneSESecondGen
iPadProSecondGen
iPadProSecondGenCellular
iPadProFourthGen
iPadProFourthGenCellular
iPhone12Mini
iPhone12
iPhone12Pro
iPhone12ProMax
iPadAir4
iPadAir4Cellular
iPadEighthGen
iPadEighthGenCellular
iPadProThirdGen
iPadProThirdGenCellular
iPadProFifthGen
iPadProFifthGenCellular
iPhone13Pro
iPhone13ProMax
iPhone13Mini
iPhone13
iPadMiniSixthGen
iPadMiniSixthGenCellular
iPadNinthGen
iPadNinthGenCellular
iPhoneSEThirdGen
iPadAirFifthGen
iPadAirFifthGenCellular
iPhone14
iPhone14Plus
iPhone14Pro
iPhone14ProMax
iPadTenthGen
iPadTenthGenCellular
iPadPro11FourthGen
iPadPro11FourthGenCellular
iPadProSixthGen
iPadProSixthGenCellular
Pricing by country
| Country | Price |
|---|---|
| Canada | free |
| China | free |
| UK | free |
| India | free |
| Japan | free |
| Korea, Republic Of | free |
| Russia | free |
| Turkey | free |
| USA | free |
| Ukraine | free |
